The LBI DHP participation in the H2O project – as an associated collaborator – will create synergy with the DH-Convener project for integrating Patient-Generated Health Data (PGHD) with ELGA.
The Health Outcomes Observatory (H2O) -EU Innovative Medicines Initiative 2 (IMI2)- project aims to strengthen the patient voice in health care. The H2O project is led by the pharmaceutical company TAKEDA and coordinated by the Medical University of Vienna (MUW). The LBI DHP, as an H2O associate collaborator, will participate with the project consortium (over 20 partners from 12 different countries) in creating a robust data governance model that empowers patients to have control of their data. With patient consent, ethical and secure analysis of the data can be performed for the interest of society, science, and patient care.
The H2Os are initially being created in four countries – Netherlands, Austria, Germany and Spain – covering three diseases (cancer, diabetes and inflammatory bowel disease). This will be followed by extending the concept across Europe and to other diseases.
The LBI DHP will collaborate with MedUni Wien in developing the H2O Austrian physician/healthcare provider portal and the associated H2O Austrian observatory.